EpiNet SUDEP Registry

The EpiNet database is being used to collect information about SUDEP. Neurologists and epileptologists from anywhere in the world can enter data using a standardised form about all patients they learn about who have died as a result of SUDEP.

Start date: 1 August 2019
Region: Africa, Asia & Oceania, Eastern Mediterranean, Europe, Latin America, North America
Language: English
Location: International
Principal investigator / organizer: Peter Bergin
Patient age: All ages
Type of project: Research
Funding sources: Government, Institutional, Private, Foundation, Consumer organization
Project needs: Funding, Information regarding patients who die of SUDEP

Contact: Erica Beilharz