EpiNet comprises a secure international patient database. Data can be collected about all people with epilepsy in a systematic manner. The goals are to establish registries, and to run large, simple, pragmatic, randomised controlled trials. Trials will be investigator-initiated and independent. We want to create a culture in which epileptologists will automatically seek to enter patients into registries and/or randomised controlled trials when there is uncertainty regarding the optimal treatment. The database is also designed to provide a useful clinical tool for the clinicians who use it. EpiNet records can be linked with other electronic medical records.
Start date: 1 January 2011
Regions: Africa, Asia & Oceania, Eastern Mediterranean, Europe, Latin America, North America
Language: English
Location: International
Principal investigator / organizer: Peter Bergin
Patient age: All ages
Type of project: Clinical, Research
Funding sources: Government, Institutional, Private, Foundation, Consumer organization
Project needs: Volunteers, Funding, Neurologists and epileptologists anywhere can become Investigators
Related publications:
- Bergin P, Frith R, Walker E, Timmings P. How to get the answer to nearly everything: Using the internet for epilepsy research. Epilepsia. 2007;48(7):1415-1424. doi:10.1111/j.1528-1167.2007.01060_1.x
- Bergin P, Sadleir L, Legros B, et al. An international pilot study of an internet-based platform to facilitate clinical research in epilepsy: The EpiNet project. Epilepsia. 2012;53(10):1829-1835. doi:10.1111/j.1528-1167.2012.03636.x
- Bergin PS, Brockington A, Jayabal J, et al. Status epilepticus in Auckland, New Zealand: Incidence, etiology, and outcomes. Epilepsia. 2019;60(8):1552-1564. doi:10.1111/epi.16277
- Bergin PS, Beghi E, Sadleir LG, et al. EpiNet as a way of involving more physicians and patients in epilepsy research: Validation study and accreditation process. Epilepsia Open. 2017;2(1):20-31. Published 2017 Jan 3. doi:10.1002/epi4.12033
- Bergin PS, Beghi E, Sadleir LG, et al. Do neurologists around the world agree when diagnosing epilepsy? – Results of an international EpiNet study. Epilepsy Res. 2018;139:43-50. doi:10.1016/j.eplepsyres.2017.10.014
- Bergin P, Langan Y, Beghi E, et al. Invitation to participate in a prospective case–control study of sudden unexpected death in epilepsy. Epilepsia. 2021;62(5):1280-1281. doi:10.1111/epi.16898
Contact: Erica Beilharz, EpiNet Administrator