EpiNet Case Control Study of SUDEP

We intend to identify 200 cases of SUDEP, and for each case we will also identify three age- and sex-matched controls from the same centre. There will also be one proxy control, who will be a relative of one of the control subjects with epilepsy. Each centre needs to identify a cohort from which cases and controls will be identified. The cohort needs to be defined when centres join the study. SUDEP cases are going to be collected prospectively, and therefore only people who are alive on 1 January 2020 can be included.

Start date: 1 January 2020 | Proposed end date: 31 December 2024
Regions: Africa, Asia & Oceania, Eastern Mediterranean, Europe, Latin America, North America
Languages: English
Location: International
Principal investigator / organizer: Peter Bergin
Patient age: All ages
Type of project: Research
Funding sources: Government, Institutional, Private, Foundation, Consumer organization
Project needs: Investigators to enter data regarding SUDEP cases and to identify control subjects
Related publication: Bergin, P., Langan, Y., Beghi, E., Donner, E., Cock, H., D’Souza, W., Thomas, R. and Scragg, R. (2021), Invitation to participate in a prospective case–control study of sudden unexpected death in epilepsy. Epilepsia, 62: 1280-1281.

Contact: Erica Beilharz